Life Experiences with Coeliac Disease among Patients Referred to Iranian Coeliac Society

Subject Areas : Journal of Family Centered Health Care

Narges Sadeghi ¹ , Reyhaneh Alsadat Hesami ² , Fatemeh Rafiei ³

1 - Community Health Research Center, Isfahan (Khorasgan) Branch, Islamic Azad University, Isfahan, Iran.
2 -
3 -

Received: 2023-11-21 Accepted : 2024-07-08 Published : 2024-11-05

Keywords: Coeliac Disease, Life Experiences, Phenomenology,

Abstract :

Introduction: During the last two decades, the rate of diagnosing coeliac disease has increased significantly in Iran. The present study aims to describe the life experiences with coeliac disease among the patients referred to the Iranian Coeliac Society in 2017. Methods: In the present descriptive phenomenology, 19 patients with coeliac disease referred to the Iranian Coeliac Society, were selected as participants by purposeful sampling method. The data were collected through in-depth interviews with an average of 45 minutes for each session at the coeliac center. The sampling process continued until the data saturation was achieved. The nine-step Colaizzi method was used to analyze the data. Results: Based on the results, eight issues such as psychological distress, fighting with disease, disease ambiguity, challenging diets, disease non-acceptance, social isolation, the tendency towards spirituality, disease acceptance efforts, and four other categories such as fear, anxiety, despair, stress and mental instability, and 11 subcategories were identified as life experiences with Coeliac disease. About living with coeliac disease, 8 themes were extracted from the patients’ experiences. Conclusion: Since the findings help nurses understand the life experiences of coeliac patients, they can provide appropriate nursing care based on the patient’s needs through the research result. Keywords: Coeliac Disease, Life Experiences, Phenomenology

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